Monday, April 24, 2017

The Shape of Now


I'm sitting in a medical office, reading a book of poetry. Maybe I'm not reading it. I've been on the same page for 15 minutes, rereading the same words until they take root. There is a television with hockey on it playing in the background. In the time that I am sitting, a woman is struggling to breathe. She is having a panic attack about the MRI she is about to undergo. The nurse calms her and they talk options.

A teen girl is weeping loudly, taking great gasps of breath and her mother is saying, "You have to do this. You have to do this. You have to get an MRI or else they won't know why you have the migraines."

I desperately want to encourage her, but I hold my tongue and incline towards prayer. Perhaps that is my purpose in this moment.

My husband comes out of his MRI and we leave.

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Dan is struggling to sit up. He is laughing the kind of laugh which I associate with the midwest. It's the kind of half-laugh which says, "I'm hurting, but I'm not interested in talking about it." So we don't. I'm helping him putting his tshirt on over his head. He holds his head against me to steady himself. He hasn't showered or shaved in a while, which I know bothers him. He doesn't mention it. Instead he says, "This wasn't in our marriage vows, was it?" We both smile.

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I go outside and realize suddenly that it is spring. It's an unsteady definition in Chicago. The first day of spring here it was hailing. But now there is a robin squatting on her nest, the sun is warm and everything is very green. My eyes are happy and so it my skin. It feels warm and hopeful outside.

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My daughter was diagnosed with autism a month ago. I was grateful for the diagnosis. I rolled up my sleeves and began learning the terminology. The words felt important, some with as many as five syllables. Sometimes words with many syllables feel like they can take care of us. I felt strong and knowledgable which made me want to do things more quickly to "get it over with." But then I let the information wash over me in a more accepting way, seeing that some things I will not change and some things I will. I felt less powerful but more anchored.

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A stranger with a dog outside hears me tell a neighbor that my husband has a herniated disc and asks if I have a doctor. Her eyes suggest that she has a lot of information. A lot of people have a lot of information. Even the doctors have information that doesn't agree. So I tell her, quite plainly, "We're good in the advice department." In my mind I tell myself that I will never offer advice to anyone else ever in my entire life. But I know that isn't true.

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I am tucking Eve in bed at night. She tells me that Montana is the fourth biggest state. She has been studying a map on the floor. I smile at her mind.

She tells me that a boy in school farted and said "Excuse me." She thinks he is very brave for owning up to it. She thinks other people wouldn't do that. She admires him. Her thoughts are so special to me.

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My thirteen year old is going to an orthodontics appointment today. It feels nice to go to a non emergency doctor appointment. 

My husband remarked this week that she is looking more like a woman than a girl. He's right. She's lovely. Perhaps most parents look at their children and think, "I didn't know this beauty could come from me." Which a form of grace that all parents need, that their work in not in vain.

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I have two medical conditions in two members of my family which will require a lot of care on my part. I must be their advocate. That is the word you use if you are speaking up for someone else: Advocate. It's trendy and sounds better than the word "naggy."

I'm struck with how tired I am. It's more a fact than asking for pity. How curious, I think, that I am so tired. I must be practical: How can I care for myself so I don't burn out? I remember that my modus operandi isn't working:
Typically I buy a lot of office supplies to help me feel organized.
I lay out some half-hearted prayers.
And then I become overly responsible and think condescending thoughts on anyone who is not responsible. 

I decide that something needs to change. I want to ask Jesus how useful he is. He is telling me that he is very useful. I ask him to provide a plumber and he does. And now I am asking for an electrician to show up. I am saying that I'm not interested in being shiny or rested or skinny or organized or anything that gets good grades. I want my eyes to stop stinging. I want a shower. And I just want to rest in the knowing that I don't have to play God. I can just be Emily. 

I sit in the unknown and wait.